Monday, January 2, 2012

Prayers needed for a special little boy


I don't usually send out prayer requests, but I have a friend who could really, really use some extra love and good thoughts sent her way. To make a very long and emotional story short, her sweet little boy, Levi (15 months), is hopefully going to undergo heart surgery on Jan 5th. This is a little summary of what he's gone through in 15 short months from his Care Pages:

We found out at our 20 week ultrasound that Levi had several congenital heart defects that would require surgery shortly after birth and several more times throughout his life.

Levi has:

L-Transposition of the Great Arteries
Pulmonary Atresia
Ventricular Septal Defect
Dextrocardia
Supraventricular Tachcardia
Atrial Ectopic Tachycardia

At six days old, Levi had his first operation. He received a 4mm BT shunt, and had a simultaneous Ductus Arteriosus ligation.

That shunt lasted almost 6 months to the day. At six months, his oxygen saturations began declining and his cyanosis was much more apparent, and so he was admitted for a cardiac catheterization, which showed shunt stenosis. He then had the 4mm shunt replaced with a 5mm shunt.

It is our hope that his shunt will last him until age 12-18 months when he will get his big corrective operation.

This next surgery will include:

A double switch modified Senning and a Nikaidoh procedure with a cadaveric graft.


Levi's been sick with croup since Thanksgiving and he obviously needs to be well for such a large operation. They decide tomorrow if they can go through with the surgery or not. His mother has taken the other two boys out of preschool and has been home with them since then so they can all get well and not infect Levi. I don't know how the mother has kept sane being home with the 3 boys for such a long time, actually, I should say don't know how she's stayed sane since her 20 week appt! The entire family has gone through so much.

So, if you could take the time to say a little prayer for little Levi that he can actually have the surgery on Friday and that all goes smoothly, I'm sure they'd appreciate it.

For more info on Levi you can visit his Care Page at:

http://www.carepages.com/carepages/TheheartofLevi

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